So Cannon first again! My 4 lb 1oz fighting machine! Love this silly face!
At the end of last week, Cannon was doing so well being able to be weened off the ventilator and onto CPAP! He was taking his feeds well also! Saturday I got to hold him finally and that was only the second time in a month and one week! Then Sunday morning we got a call from the neurologist and his incision from the reservoir was leaking AGAIN! The Dr. could not explain why, which was very frustrating! The ventricles are not enlarging and he did not have an infection which is great but left the Dr. wondering. So Cannon had to be put back on the ventilator and have his feeds stopped so he could fix the problem. He decided to go back and put some tissue over the catheter spot where he taps him, cut off the bad skin and re-stitch him back with better, fresh skin. With babies this small their skin is like tissue paper and it makes it hard for them to get a good seal but they do the best they can. Sunday was such an emotional day because we just felt so defeated after being on such a high from him doing so well. They decided to keep him on the ventilator the next day to let him rest and recover but wanted to take him back off and onto Cpap that night! He also some how managed to get his chest tube out also! The drs were fine with that because they were about to take it out anyway! That stinker just knew he didn't need it anymore and wanted it out! Since then he has been a whole new baby! He just looks like he feels so much better and looks better! They have already weened his Cpap machine staying from 22 to 28%! He is almost to full feeds, wearing clothes and in a open crib! We are so proud of his progress but continue to take one day at a time! We praise The Lord for each wonderful day but we also know that each day is so different! We pray that Cannon continues to move forward! He has had a rough road so far and he needs a break so he can keep growing and developing! So proud you you Cann man!
P.S. The hat is only to keep his nose prongs on for his CPap. It has nothing to do neurologically! He also loves his mouth piece aka... Paci!
Now Braxton... Our 3 lb 15 oz, let's just say 4lbs ;) sleeping and pooping machine!
Braxton has been progressing wonderfully! There isn't much change with him. His PDA is still open and probably won't close on it's own. Which means he will have to have it liagated at some point before he goes home. It isn't bothering him now so they want him to get bigger and stronger so that he can be better prepared for laparoscopic surgery before he goes home. It is less invasive than the surgery that Cannon had! He is now on 1/4 liter nasal cannula and can go to level 2! The nurse practitioner said that if he does well on 1/4 they may even take him off of the cannula and have him breathing room air on his own! Quite scary for mom but he is basically already doing it on his own! Look at Braxton go! It makes my heart happy to see how well he has progressed! I am one proud mommy! Although we will miss our wonderful nurses, practioners, and drs in level 3, we are beyond thrilled that Braxton is one step closer to going home! He already has quite the personality! Loves to be held and loves his mouth piece!
I also want to say thank you to Sarah Domel and Julie New for setting up the Facebook group about the prayer bracelets for the boys! Join the "Cannon and Braxton Bell prayer bracelets" group of Facebook for more information. We are beyond thankful and are humbled by all the response so far! They have not ordered them yet but are trying to see what the demand will be! If you would like one they will be at 4 or 5 different locations. One in Magnolia, two in Clifton maybe, one in Meridian and one in China Spring. Those locations will be announced when the bracelets come in. If you are out of town email sgdomel@gmail.com and they will get one to you by mail. Here is the proof...
If you are wondering about the verse on the bracelets I will explain! It is also in a song that I posted a few weeks ago that has carried me through this journey. The song is called, I WILL PRAISE YOU IN THIS STORM by Casting Crowns. Psalm 121:1,2 says, "I lift up my eyes to the hills. From where does my help come? My help comes from the Lord, who made heaven and earth." This verse was also on a gift we received from a dear friend, Brittany Gregory. After receiving the gift, I knew that this verse was meant for the boys! It couldn't be more perfect! All of their progress has come from the GREAT healer above! Yes, our Dr's on Earth are wonderful and talented but they get their wisdom and knowledge from the ONE who holds the most power of all!!
Our boys are so loved and prayed for by so many! It makes our hearts happy and we truly feel the support from you guys! Shawn and I are beyond blessed to be from such wonderful supportive communities that are eager to help when people are in need! You all are our family and we love you all! We can't wait to tell the boys when they are older about all the people that prayed for them before they were even born! Again, thank you! I don't think I will ever be able to say this enough!
Trusting in him,
Shawn, Hali, Cannon and Braxton
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